embo
Hi Steve,
I read your story and you have truly been through a lot. I'm so sorry to hear that you still after all these procedures have symptoms and problems caused by the avm.
I was diagnosed with a spinal avm some months ago after having problems with my legs for years. Mine is a type II located inside the spinal cord at TH12. I'm from Sweden and was sent to Paris to have an embolization which removed 80 % of the avm. I'm now waiting for my second embo that hopefully will remove the remaining part. The neuroradiologist who performed the embo is from what i understand one of the best in world (if not the best). I don't know what possibilites you have to seek medical advice abroad but if you can i strongly recommend you to consult him. The technique and materials have developed a lot just over the past years and this hospital in Paris has the newest technology and equipment. The name of the hospital is Hopital Foch and the neuroradiologist is George Rodesch. Maybe he could help you!
Best wishes to you!
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