[traci]

Hi my name is Traci and my son Joey has spinal avm, we found out early December 2009. I am still overwhelmed and not sure what is going on. I have looked online and talked to drs till i am blue in the face and i am still shocked. Joey's spinal avm is massive, he has had 2 angiograms (blockage was done) and surgery. We go back to the childrens hospital in Jan for more. He was totaly paralized from waist down when we went in, but he has gotten everything back except for right foot which will probably never come back because he had bleeding and it did damage.

I am not sure if I can go to SS to claim him disabled, and they are not done trying to stop this thing, so i am not sure if he will have more damage later. He went without his bladder for 3 weeks and had to learn how to cath hisself (which is not fun with a 12yr old male).

Right now I guess I just need support, no one really understand what I am talking about and I feel alone. I am scared to death! My baby is 12, what is his life going to be like? Will he have a life? Will I have to bury my child? Those questions run through my mind alot, and no dr can answer them. Please
just share any thoughts u may have with me good or bad i just want to know we are not alone.

Thanks
Traci